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| ['''feature 5''': risk of harming by detection/contact/tracing ] [how to know?]<br> | | ['''feature 5''': risk of harming by detection/contact/tracing ] [how to know?]<br> |
− | variables[a][b][c][d][e][f]: affair, illegal activities, hard to account, who is accessing the data? for which purposes?<br> | + | variables |
− | keyword: stigmatization,
| + | two families of stigmatization risks: |
| + | A) socially undesired behaviour. e.g., illegal activities, -> have incentive to avoid surveillance -> risk is not intrinsically related to the generation of useful knowledge from an epidemiological point of view -> surveillance can try to mitigate the problem by getting as much information as possible about the disease-related aspects of behaviour, ignoring or masking the non-disease-related aspects of the behavior |
| + | B) all groups combining a high degree of risk of contagion with a high risk of contaminating others, based on demographic, lifestyle, occupational characteristics -> stigmatization risk is intrinsic to (and highly correlated with) the generation of useful knowledge from an epidemiological point of view -> surveillance can try to mitigate the problem by a) intervening on the granularity of the description of risk-related phenomena (may be in trade-off with data utility), b) adopting a language that does not revolve around concrete sociological categories |
| + | keywords: stigmatization, discrimination, group exclusion. |
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− | ['''feature 6''': communication risks, e.g. miscommunication, fear, stigmatization] [how to assess this?]<br> | + | ['''feature 6''': communication risks, e.g. miscommunication, fear, stigmatization] [how to assess[h] this?] |
− | variables: age, level of education<br> | + | variables: age, level of education, <br> |