Events/HackCovid/2020-03-28

HackCovid-Leman
date: Saturday 28 March 2020
where: ONLINE from 10AM --> https://tinyurl.com/hackcovid Zoom:957 309 096
from 10AM to 5PM HACKATHON
register here if you haven't: https://www.eventbrite.com/e/hackcovid-leman-tickets-94729014031

Everybody can contribute by editing the document.
We expect to collect in particular: topics of interest to create groups of work, group leaders, specific objectives in relation to the general statement, outputs you wish to achieve by the end of the event, collaborative tools.

Questionnaire COVID-19 lifestyles and contagion

Please take the time to answer this questionnaire it will help working on the results during the hackathon:

English https://docs.google.com/forms/d/e/1FAIpQLSf7KUF_Bh96PePlN-77a4KiSnxkUdpjHzjKyD1t3__B0FJn6A/viewform?usp=pp_url

French https://docs.google.com/forms/d/e/1FAIpQLSfhhVpiJjg1S_g3ahqpUQvtjx14nm9603Dxa0uckfAX9vyfqw/viewform?usp=pp_url

Spanish https://docs.google.com/forms/d/e/1FAIpQLSc-S9PuJyBLsBipvZdqeVBKC6rH-MdxGWbfUqO1tEkfaXhUiA/viewform?usp=pp_url

Goals

Our initiative is part of the more general framework of MyData: https://docs.google.com/document/d/1JONwa781NSuxyVANzTSxruR23z2_YPTEdcxsS3PNMpM/edit#

The characteristics of the virus and of COVID-19 could be confronted with the collection of personal data, to stop the spread and to enter into epidemiological modelling, in order to get out of the crisis as quickly as possible. This is feasible with an interdisciplinary approach. Epidemiologists, scientists, hacktivists, ethicists, elected officials, civil servants and citizens all have a role to play.

Although data collection may be seen as essential to understand the current problem and find solutions within a consistent technical, legal and ethical framework, we are compelled to prepare and obtain informed consent from individuals, which we believe is crucial to balancing the public health emergency and safeguarding fundamental rights and freedoms, in the short, medium and long term. We also have the challenge of social inclusion to create a model that is adapted to different contexts, lifestyles, and access to basic and technological resources where it will have to be evaluated what can actually be collected and shared, taking into account the profile of people who do not wish or cannot share data.

This event is intended to be a space for discussion, debate, sharing and development. You are free to propose ideas, provide constructive criticism and work both autonomously and in coordination.

Schedule

1.Introduction by Paul-Olivier Dehaye

2.SHORT TALKS

• biological aspect: understanding the virus
• why tracing?
• sociological aspect: explain the context population, authorities, public health, why work on this? how to count those who do not have voices without data? seek data minimization, what is the social meaning of monitoring, on what scale? (Miles and Jessica)
• technical aspect: understanding transparency in existing solutions (Lennig) legality in relation to proportionality (PO) global vs. local context, how to prove that tracing is necessary?
• our initiative stemming from MyData (PO): governance, trusted intermediaries, informed consent, COVID-19 MyData Commons

3. Presentation of groups so everyone can make a choice where to participate.

• comments, questions, new ideas

4. Group formation in Zoom according to the number of group 1-6

5. Break (12.30pm-2pm)

6. Quick sync (2pm-2.30pm)

7. Second round of group work (2.30pm-4pm)

7. Conclusions (4pm-5pm)

8. Celebrations Apero

9. Post HackCovid. Follow up

Working groups

Group 1: Legal informed consent data protection
privacy
impact assessment
data subjects rights to ensure
clarify analysis that will be conducted with personal data
risks minimization
balancing tests

Group 2: data collection
crowdsourcing what data to collect
how much to collect
what is useful in respect to questions we want to answer
from which sources, databases
data storage
data protection
tools, scripts for automatic collection
see: Crowdsourced data collection: what to get?

Group 3: data anthropology
state of the art: epidemiology, social sciences, data science
how are communities, and social networks built
qualitative study. Survey users about routines in house, mobility, shopping, social contacts, children and family care
build personas
research agenda
relation with public health
relation with crowdsourcing
what are the solutions for people without internet, devices, that do not want to track? what are the benefits of those type of persons for the whole community in terms of privacy, infrastructure costs...?

Group 4: tech savvy
apps security infrastructure

Group 5: ethics
merge with data anthropology?

Group 6: data Viz

Group 7: science-policy interface
developing a science-policy interface to bring projects inspired by "Covid19Mydata commons values" to the attention of Governments and International Geneva.

Participants

add your name
Palrogg
Pidoux
Podehaye
Genferei
Maumau1
...

Hack code of conduit

Our hackathon is dedicated to providing a safe and comfortable environment and harassment-free experience for everyone. We do not tolerate harassment of hackathon participants in any form. Hackathon participants violating these rules may be sanctioned or expelled from the hackathon at the discretion of the hackathon organisers.

Resources

Good practices

How to set-up an online hackhaton within 6 hours

MyData Slack

MyData slack with a lot of resources to filter in the different channels mydataglobal.slack.com/ #coronadata #coronavalues #coronaneeds #coronainfo

Forum

Our forum: https://forum.personaldata.io/c/hackcovid/ or https://forum.personaldata.io/c/coronadata with different links, apps, databases, scientific articles to browse by topic

COVID-19 App

App List https://trello.com/b/uKXApmGN/mydata-global-covid-19-app-list

App list available on the wiki

Selected press articles

Press articles available on the Wiki

Scholarly articles

Selected scholarly articles available on the Wiki

Data dictionaries for intake of COVID patients

• from Geneva Canton, a RedCap dictionary(https://www.dropbox.com/s/nfos9rv7iwkyyaz/SuiviCOVID19_DataDictionary_2020-03-22.csv?dl=0) for the intake of COVID-positive patients
  
• from the UK: COVID self-assessment standards(https://ckm.apperta.org/ckm/templates/1051.57.241) and other standards relating to COVID added [here](https://ckm.apperta.org/ckm) (website is difficult, please add below what you have)
  
• from China in openEHR(https://discourse.openehr.org/t/covid-19-diagnosis-and-treatment-decision-support-openehr-templates-and-rules/516)
  
• openEHR standards(https://discourse.openehr.org/t/openehr-covid-19-project/448)